Almost ready
Today someone asked me why I haven't been blogging right as I was taking pics to add to a blog post.I told you all a while ago that I was tired of myself being a negative Nelly and I want this to be...
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Why I don’t support Autism Speaks (which is why I don’t ‘light it up blue’)...
April 2nd is World Autism Day and I thought having a well respected and recognized mother of 2 Autistic boys would be the perfect guest blogger with a message I feel passionate about. AND she just...
View ArticleTime to fess up
Hey all.First I want to apologize for abandoning this blog. I was not my intention and I do one day hope to get back to it.As it is what happens sometimes, real life has gotten in the way of me having...
View ArticleSometimes I forget
Sometimes I forget that Abby has something "wrong" with her. Lately its been easy to just accept her as her and our life for what it is. Without realizing it consciously I have hunkered down into our...
View ArticleA Change in Abby. (Take that, Rett Syndrome!)
There has been a change in Abby lately that I have been amazed by. It kind of snuck up on us and every day she surprises us a little bit more.As per usual it takes me a bit to realize when something is...
View ArticleWhen she's sick she's better
Abby has Pneumonia so why the weird title?I wish I could show you on video but as with everything Rett, on command isn't really a possibility.Abby woke up 3 days ago in the middle of the night with a...
View ArticleNew research funding puts Rett Syndrome cure on the horizon | Business Standard
I woke up this am to find the most amazing news. We are on our way...and as we sometimes forget....there is hope.Researchers from Scotland and the US are taking a step towards reversing the effects of...
View ArticleAbby can danceydance!
Last night Abby was on a roll. She was dancing and giggling and likes she does, she wanted me to sing every song and dance with her. I sat down next to the tv so she could still watch and her nurse got...
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Go team!
Sometimes in my world of poor me, why me and general selfish boo hooness I forget how fortunate we really are. And as always, she finds a way to remind me.This morning we were going through all the...
View ArticleDaddy change the channel
The one thing us Special Needs and Rett parents harp on endlessly is the fact that our kids are in there. They are communicating. They can hear you. You just cant hear them...because you are not...
View ArticleBest Dressed Baby in the ICU: You know you're the parent of a medically...
A friend posted this blog on Facebook and I have to say it is the most true and applicable to our life things I have ever read.Thank you once again family off Ella Grace for writing the words of our...
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Vote for Teresa Vejrosta - Kansas City, MO in the 2014 National Mobility...
Dear Friends,My friend Pam, whom I have mentioned on my blog several times over the years has entered Abby and I in A national contest to win and adaptive van. Only 3 vans are given away in the country...
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AN ACCESSIBLE VAN FOR ABBY!
Dear friends ...As you may know I have been nominated to win an adaptive van....for Abby in the National Mobility Awareness contest. I would appreciate the support by voting and sharing with your...
View ArticleAbby is sleepy
Last night, at the time I didn't realize what I was getting. I knew in my head that she was tired and ready for bed but didn't realize she was telling me until I watched this right after I took it.For...
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Team Sparkle runs for Rett.
Hello all. As I save before I stink at Fundraising! What a way to open a blogpost huh?I need help from you to change all that. Im a quitter. Its terrible but I am. I like to think of it as more of a...
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Thank you Leana
A few blog posts ago I went on and on about the Disney Marathon and shared lots of pics with you.What I didn't have at the time was any pics of the woman, then only woman who ran in Abbys honor.A...
View ArticleFinally Research In language I can understand.
Don't get me wrong. I'm no dummy....OK for the most part I'm not but do sometimes get tongue tied or freeze when telling people about Research and HOPE for Rett Syndrome.Rett Syndrome is complicated...
View ArticleTemporarily Closed
Please feel free to learn,educate and advocate from previous posts. We will be closed for the foreseeable future. We have many links and posts for your enjoyment,God Bless
View ArticleWe are back!
I have missed my blog and am re opening it. There are some things I want to say before we all proceed.1. It's my blog. Not yours. My thoughts, my feelings, my life and my experiences. Take your...
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Catch up on my Mom and some awesome pics
These first few comeback blogs will be from Abby's perspective or narrative as her Mom thinks it is My Mom has been complaining of back,neck and shoulder pain for over a year. When she finally got...
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